The hum of computers fills room A208 as students settle into their routines as they edit clips for the weekly episode of KYOT. In the middle of it all, Scott Culver (11) rolls up to his desk, ready to work. Beside him his para, Matthew Willeto, jumps into help.
Culver was diagnosed with Cerebral Palsy (CP), there are three types of CP: spastic, dyskinetic and ataxic. Scott has spastic quadriplegic spasticity,the most severe type of CP. Cerebral Palsy is a life long movement and posture disorder that happens when there is damage or developmental change within the brain that controls muscle movement.
“It hasn’t really changed my life, because CP is a lifelong disorder with no cure,” Culver said. “So I knew pretty early on. My parents told me pretty early on that I couldn’t walk. Well, not normally. At least I can walk with assistance.”
For Culver, his assistance at school includes the use of wheeled mobility and the help of a para to assist in physical school activities. Culvers para Willetto assists him during lunch and 5th period.
“There’s some accessibility stuff with various programs that he needs help with.” Willeto said. “He has his foam mouse that he can use (to edit his KYOT videos). But sometimes if he’s trying to get stuff typed fast, I’ll dictate for him.”
This year, Willeto has been with Scott since February. Over the past couple of months they have built a strong bond in both KYOT and lunch.
“It’s been really nice for both of us to have the consistency of always having lunch together, and I’m getting to know what his preferences are and what his needs are for lunch,” Willetto said. “He’s always just super fun to hang out with.”
Similarly to the way Willetto helps with activities such as typing on the computer, Cailin Nygren is also one of Culver’s paras during 1st and 7th period. Cailin helps Culver with taking notes or going to the bathroom.
“We kind of just work on things he needs to work on, math and all the subjects,” Nygren said. “He’s very, very tech savvy.”
Nygren has been helping Culver for over a year now, and over that time they have built a very special bond.
“It’s always a pleasure. We have deep conversations.” Nygren said. “We mostly talk about sports and life. He’s a very awesome individual.”
Even with Nygren’s help, Culver still finds ways to be independent and navigate his everyday life.
“Like a lot of them have more freedom when it comes to a social event, we try not to hover or over protect.” Nygren said. “It’s like they live their life as teenagers as well.”
Culver seeks independence and freedom in his everyday life, from his willingness to advocate for himself to his physical accommodations to get work done.
“I need to have confidence to advocate, I need to a lot more than usual,” Culver said.
With 200 million people around the world living with intellectual and developmental disabilities, misconceptions are often circulating.
“There’s an assumption that they can’t work in the industries that they want to work in, or go to college.” Nygren said. “I’ve worked with people with CP that also are non verbal, which just restricted their vocal cords, and there was a lot of frustration with that, and a lot of people assumed that they also weren’t able to think for themselves or communicate, and they had their own way of communicating”
While Scott has paras with him on a day to day basis accommodating him, there is always room for improvement when it comes to Scott’s specific needs.
“We (Monarch) don’t have people that specialize in it (CP) and there’s not a whole lot of students that have it here.” Nygren said. “I think we have really good physical therapists. I do wish he would have more physical therapy, like at the school itself. That’s the resource I wish we had more of. He could get out of his chair and do some more PT.”
For Culver, misconceptions revolving around CP are extremely common, especially within a high school setting.
“I think when people hear the word CP, they think it’s a brain disorder that makes you a little less smart, which none of the three types are,” Culver said.
The assumptions go away when people talk to him and get to know who Culver is as a person.
“I think there’s a bit of nervousness, considering I have a 515 pound chair,” Culver said. “But I think once they get to know me, they’re just fine.”




























